Lived Experiences of Mothers Caring Children with Cerebral Palsy in Rwanda: A Phenomenological Study

Background Mothers of children with CP face increased responsibilities and challenges, exacerbated by traditional gender roles that assign most home duties to women. In patriarchal societies such as Rwanda, these gender norms can limit women's rights and reinforce unequal power dynamics. Despite the joy that children with disabilities may bring, caregiving imposes emotional, physical, and financial burdens, affecting caregivers' overall well-being and marital relationships. Research on cerebral palsy in Rwanda is limited, with existing studies suggesting that mothers face significant challenges. Objective This study explored the lived experiences of mothers of children with cerebral palsy and identified the specific difficulties they encounter. Methodology: This study used a phenomenological hermeneutic study design to explore the lived experiences of mothers as well as their challenges in caring for children with cerebral palsy. A purposive sample of ten mothers of children with cerebral palsy was recruited. The key informants’ interviews were conducted via an interview guide, and NVIVO was used to identify and label meaningful segments of data related to the research questions systematically. Codes that describe challenges faced by mothers and emotional experiences were created. Themes emerged as long as researchers were organizing and grouping related codes into broader themes. Results Mothers who are responsible for the care of their children with cerebral palsy encounter challenging and stressful circumstances, including marital difficulties, time-consuming care, financial burdens and social stigma. Additionally, they grapple with feelings of hopelessness regarding the future of their children and struggle to select appropriate food for their children. Conclusion The findings suggest that there is a need to support mothers of children with cerebral palsy to improve the quality of life of their children. Health facilities should help these mothers care for and treat their children.