The Data Tags Suite (DATS) model for discovering data access and use requirements
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Abstract
Background
Data reuse is often controlled to protect the privacy of subjects and patients. Data discovery tools need ways to inform researchers about restrictions on data access and re-use.
Results
We present elements in the Data Tags Suite (DATS) metadata schema describing data access, data use conditions, and consent information. DATS metadata are explained in terms of the administrative, legal, and technical systems used to protect confidential data.
Conclusions
The access and use metadata items in DATS are designed from the perspective of a researcher who wants to find and re-use existing data. We call for standard ways of describing informed consent and data use agreements that will enable automated systems for managing research data.
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Now published in GigaScience doi: 10.1093/gigascience/giz165
George Alter 1University of MichiganFind this author on Google ScholarFind this author on PubMedSearch for this author on this siteORCID record for George AlterAlejandra Gonzalez-Beltran 2University of OxfordFind this author on Google ScholarFind this author on PubMedSearch for this author on this siteORCID record for Alejandra Gonzalez-BeltranLucila Ohno-Machado 3University of California at San DiegoFind this author on Google ScholarFind this author on PubMedSearch for this author on this siteORCID record for Lucila Ohno-MachadoPhilippe Rocca-Serra 4University of OxfordFind this author on Google ScholarFind this author on PubMedSearch for this author on this siteORCID record for Philippe Rocca-Serra
A version of this preprint has been published in the Open Access journal …
Now published in GigaScience doi: 10.1093/gigascience/giz165
George Alter 1University of MichiganFind this author on Google ScholarFind this author on PubMedSearch for this author on this siteORCID record for George AlterAlejandra Gonzalez-Beltran 2University of OxfordFind this author on Google ScholarFind this author on PubMedSearch for this author on this siteORCID record for Alejandra Gonzalez-BeltranLucila Ohno-Machado 3University of California at San DiegoFind this author on Google ScholarFind this author on PubMedSearch for this author on this siteORCID record for Lucila Ohno-MachadoPhilippe Rocca-Serra 4University of OxfordFind this author on Google ScholarFind this author on PubMedSearch for this author on this siteORCID record for Philippe Rocca-Serra
A version of this preprint has been published in the Open Access journal GigaScience (see paper https://doi.org/10.1093/gigascience/giz165 ), where the paper and peer reviews are published openly under a CC-BY 4.0 license.
These peer reviews were as follows:
Reviewer 1: http://dx.doi.org/10.5524/REVIEW.102087 Reviewer 2: http://dx.doi.org/10.5524/REVIEW.102088 Reviewer 3: http://dx.doi.org/10.5524/REVIEW.102089
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