“What impact does having a diagnosis of an inherited cardiac condition have on children and young people’s physical activity and Quality of Life?”
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Introduction The Inherited Cardiac Conditions are an umbrella group of genetic disorders affecting the heart. They are life-long conditions that are often diagnosed via family screening. For many years it has been customary practice to restrict physical activity in children to prevent Ventricular Arrhythmia or Sudden Cardiac Death. However, there has been a recent shift in advice, by some experts and centres especially in North America, to be less restrictive and allow unrestricted physical activity. Increased Physical activity and improved Quality of Life (QoL) have previously been linked in children affected by other diseases. Objective The proposed scoping review aims to identify and analyse the current literature on the impact that having a diagnosis of an ICC has on a young person’s physical activity and QoL. The findings will guide further study in this important area. Methods This scoping review will follow the Joanna Briggs Institute methodology.[SK1] Studies concerned with QoL and physical activity published between 1957 and 2025 will be included. The literature search will be conducted across the following databases: MEDLINE (Ovid), Scopus, Web of Science, Embase (Ovid), CINAHL and PsycINFO. Three reviewers will conduct title and abstract screening, with two reviewers conducting full-text screening; in the case that there are any conflicts these will be resolved by a senior independent reviewer. Ethics and Dissemination Ethical Approval is not required for this scoping review protocol. The protocol will be shared with researchers as an open access protocol. The findings of the review will be shared globally through an open-access peer-reviewed publication and by presenting at conferences. [SK1]No reference as it is an abstract