Participatory Systems Mapping to Explore Underserved Autistic People's Journey through Primary Healthcare

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Abstract

Autistic people experience poorer health outcomes and significant barriers to healthcare. Research has historically excluded autistic people from underserved backgrounds, such as those from racially minoritised communities, low-income households, individuals with co-occurring learning disabilities, or those who are non- or minimally speaking. Consequently, there is limited evidence on how healthcare systems can meet the needs of the most disadvantaged. This paper evaluates an innovative practice in autism research, combining co-production with Participatory Systems Mapping and creative methods to explore the healthcare experiences of underserved autistic adults. We co-designed workshops with a steering group of autistic adults from underserved groups (n= 6) using persona development, user journey mapping, and stakeholder prioritisation to evaluate and interrogate causal relationships in healthcare access. Thirty-one participants took part across four workshops from underserved community groups in South Yorkshire. The sample included representation from Somali and Black African communities (35.5%) and participants from areas of high deprivation according to the Index of Multiple Deprivation (Mdn= 2, Range= 1–9). There was also some involvement of autistic people with co-occurring learning disabilities and those who were non- or minimally speaking. Feedback from the workshops demonstrated that participants felt able to share ideas and experiences. A validated causal loop diagram was produced with the steering group ("Misalignment-Invalidation Cycle"), illustrating how communication barriers and clinician invalidation generate reinforcing loops of misalignment in understanding and disengagement from healthcare. Ultimately, this approach provides a practical blueprint for engaging underserved autistic people and generating actionable insights to inform more inclusive healthcare interventions.

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