Patient Representatives’ Perspectives on Healthcare at the Time of COVID-19 and Suggestions for Care Redesign After the Pandemic: A Qualitative Study in Twenty-Four Countries

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Abstract

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  1. SciScore for 10.1101/2021.04.06.21254840: (What is this?)

    Please note, not all rigor criteria are appropriate for all manuscripts.

    Table 1: Rigor

    Institutional Review Board StatementIRB: The study was approved by the Ethics Committee of the Medical University of Vienna (EK Number 1388/2020).
    Consent: Interviews were audio-recorded with or without video images depending on consent.
    Randomizationnot detected.
    Blindingnot detected.
    Power Analysisnot detected.
    Sex as a biological variablenot detected.

    Table 2: Resources

    No key resources detected.


    Results from OddPub: We did not detect open data. We also did not detect open code. Researchers are encouraged to share open data when possible (see Nature blog).


    Results from LimitationRecognizer: We detected the following sentences addressing limitations in the study:
    Even if the resources and capabilities exist use digital tools and telehealth, specific limitations must be considered by health professionals. The personal presence of health professionals and trusted people in delivering bad news with severe consequences for patients’ health was considered an essential aspect of care. Public health interventions in a pandemic benefit from an effective bilateral, bottom-up and top-down information stream. While individuals’ perspectives are essential to tailor interventions to their needs, clear downstream information with specific channels for certain communities could best utilise patient representatives’ roles. Testing and vaccination campaigns, if organised, could also benefit from well-informed, engaged patients and patient representatives. Moreover, making perspectives, motivations and unmet needs explicit and transparent could help overcome stigmatisation and decrease social exclusion [29]. The variation and diversity elicited in our study is a strength and limitation at the same time. While we uncovered a considerable range of experiences between and within individuals and countries, several similarities emerged. Quantitative work needs to follow up to determine the frequencies of these experiences.

    Results from TrialIdentifier: No clinical trial numbers were referenced.


    Results from Barzooka: We did not find any issues relating to the usage of bar graphs.


    Results from JetFighter: We did not find any issues relating to colormaps.


    Results from rtransparent:
    • Thank you for including a conflict of interest statement. Authors are encouraged to include this statement when submitting to a journal.
    • Thank you for including a funding statement. Authors are encouraged to include this statement when submitting to a journal.
    • No protocol registration statement was detected.

    About SciScore

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