Beyond the Hospital: Family Caregivers' Experiences in Supporting Stroke Recovery in Ghana

Stroke is a major cause of disability and mortality worldwide and has profound effects not only on survivors but also on their families. In Ghana, where formal post-stroke care services are limited, most stroke survivors depend heavily on family members for daily care. This qualitative study explored the experiences of family caregivers supporting stroke survivors attending Suntreso Government Hospital in Ghana. In-depth interviews were conducted with 15 purposively selected caregivers, and the data were analyzed thematically. The findings showed that caregivers generally had some knowledge of stroke risk factors, particularly hypertension and diabetes, although the onset of stroke was often sudden and unexpected. Caregivers provided extensive assistance with activities of daily living, which significantly disrupted their personal, social, and working lives. Many caregivers reduced their working hours or stopped working entirely, resulting in considerable financial strain. Stigmatization of stroke survivors was common, with some community members attributing stroke to spiritual causes or curses. To cope with these challenges, caregivers relied largely on religious faith, optimism about recovery, and a sense of obligation to reciprocate the care previously received from the stroke survivor. Overall, family caregivers in Ghana face substantial social, economic, and emotional burdens, compounded by stigma and limited institutional support. These findings highlight the critical role caregivers play in stroke recovery and underscore the need for strengthened support services, caregiver training, and public education to reduce stigma and integrate caregiver support into Ghana’s health system.