Through Their Eyes’: A Qualitative Study on the Impact of Virtual Reality on Parents’ Understanding of Visual Impairment

Background Children born with visual impairment perceive the world differently, which can lead to developmental delays that are often difficult for parents to understand. This uncertainty can leave them unsure of how best to support their child. Virtual Reality (VR) offers simulated experiences and is increasingly being explored as a tool to enhance empathy and understanding - particularly through Point of View (PoV) simulations. PoV VR experiences have the potential to provide personalised insights into a child’s visual impairment (VI). This study addresses the research question: What is the lived experience of parents and carers engaging in a VR simulation replicating their child’s visual condition? Methods We conducted a qualitative study to explore the lived experiences of parents and carers using a PoV VR learning experience. Semi-structured interviews, guided by a phenomenological approach, were used to gather in-depth insights. Ten parents/carers of children with VI were recruited and interviewed. Transcripts were analysed using template analysis. Results Four themes emerged that captured the depth of participants’ experiences: 1) ‘It all makes sense now’: VR allowing carers to ‘peer’ through their child’s eyes; 2) ‘A flood of emotions’; 3) ‘Seeing into their child’s future’ and 4) ‘Empowerment and advocacy’ Conclusions PoV VR enhances empathy and understanding of children’s visual abilities, empowering parents and carers to advocate more effectively for their needs. This immersive tool offers deeper insights into the lived experience of VI, underscoring its value in improving support for children with VI and their families.