The Use of AI PROMs in CYP and Clinicians

Background: Amelogenesis Imperfecta (AI) is a genetic enamel defect affecting both primary and permanent dentitions, often leading to functional, aesthetic, and psychosocial challenges. Patient Reported Outcome Measures (PROMs) are increasingly used in paediatric dentistry, including ones developed for AI. Aim: To explore the impact of AI on oral health-related quality of life in children and young persons’ using an AI-specific PROM, and to assess clinician use of the PROM in the UK. Methods: This single-centre retrospective service evaluation involved children with AI who completed a 9-question PROM pre- and mid-treatment. Responses were analysed by treatment stage, age group, and AI subtype. Clinician feedback of the AI PROM was obtained via an online survey administered via the electronic platform Qualtrics™. Results: A total of 68 completed AI PROMs, with ages ranging between 7-19 were analysed at pre-treatment and mid-treatment stages. Younger children (under 13 years) were more likely to report functional difficulties, such as pain and eating challenges, while adolescents (over 13 years) more frequently expressed psychosocial concerns including bullying and low self-confidence. Notably, satisfaction with dental appearance increased from 26% to 42% by the mid-treatment stage. In the clinician feedback survey regarding use and effectiveness of the AI PROM, 23 paediatric dentists responded from a mailing list of 78, representing a 29.5% response rate. Of the clinicians familiar with the AI PROM, 67% reported actively using it in their clinical practice. Most found the tool valuable for enhancing communication and supporting care planning, though some highlighted workflow constraints and difficulty interpreting subjective responses. Conclusion: The AI PROM, while non-validated, provided meaningful insights into patient experiences and supported more empathetic, patient-centred care. Incorporating clinician perspectives highlighted both its promise and areas for refinement. Further validation is needed to support broader clinical implementation.