Narrative Identity at the End of Life: A Qualitative Analysis of Dignity Therapy Interviews from an Existential Perspective

Background Confronting terminal illness and the prospect of death and dying can severely undermine an individual’s sense of identity, meaning and purpose in life, leading to existential suffering, increasing hopelessness, depressive symptoms, and death anxieties. Objectives This study explored how narrative approaches can alleviate existential suffering, promote emotional healing, and consolidate identity for individuals confronted with death and dying. Specifically, the study aimed to (1) analyze dimensions of identity reflected in Dignity Therapy legacy documents from a randomized controlled trial, applying Ricoeur’s framework of selfhood and identity; (2) deepen the understanding of existential suffering in relation to identity; and (3) synthesize these findings into a conceptual Model of Narrative Identity at the End of Life , grounded in existential-phenomenological theories. Methods Thirty-two Dignity Therapy interviews were analyzed using MAXQDA software for qualitative data analysis. An inductive category development approach was employed to construct a three-tiered coding system capturing key dimensions of identity. Results The identified dimensions of narrative identity included “origin”, “family”, “movement”, “societal”, “work”, “recreation”, “disruption”, “experience of the now”, “feelings”, “sense of self”, and “future”. Analysis of patients’ narratives yielded an in-depth understanding of existential suffering, as well as the contrasting experiences of authenticity, integrity, and wholeness at the end of life. Three core mechanisms emerged through which storytelling may mitigate existential suffering while reaffirming selfhood and identity: (1) the cultivation of healing connections; (2) the pursuit of coherence and meaning-making; and (3) the orientation toward hope, fostering personal transformation. These findings informed the development of a conceptual Model of Narrative Identity at the End of Life. Conclusions Confronting death and dying is challenging, yet it may serve as a catalyst for increased self-awareness, self-growth, and transformation towards greater authenticity. Storytelling is a simple yet powerful tool for reclaiming narrative identity and alleviating existential suffering during a time marked by loss of control and powerlessness. Our Model of Narrative Identity at the End of Life illustrates how storytelling facilitates depth work, through which healing connections can unfold, enabling meaning-based adaptation to terminal illness, thereby empowering individuals to retain a sense of control, agency, and autonomy, and most importantly, hope, even in the face of their own mortality. Trial registration: This study was registered with Clinical Trial Registry (ClinicalTrials.gov – Protocol Record NCT02646527; date of registration: 04/01/2016).