Unveiling the unseen: Exploring unmet needs among people living with HIV in Chittoor, Andhra Pradesh, India

Background and Objective: Discrimination, stigma, and social isolation pervade Indian society, significantly affecting HIV care outcomes. This study aims to investigate the perceived unmet needs of individuals living with HIV (PLWH). Methods: This mixed-method study enrolled adult PLWH from ART centers in Chittoor district, Andhra Pradesh. Data collection involved semi-structured interviews using a pre-tested questionnaire. Analysis encompassed descriptive and thematic approaches. Results: Among the 94 participants, the mean age was 39 years (SD 12 years), and the average duration of HIV diagnosis was 8 years (SD 5 years). The majority were female (n=65, 69%) and residents of rural areas (n=74, 78.7%). While financial needs were most prevalent, other pressing concerns included employment, child's education, housing, nutrition, healthcare, and travel. Participants voiced apprehensions about administrative hurdles and varying degrees of social challenges, such as stigma and discrimination, when accessing social protection services. Conclusion: PLWH exhibit diverse socio-economic needs for themselves and their families, many of which remain unmet due to multifaceted bottlenecks, encompassing administrative complexities, social barriers, and perceived stigma.