Caregivers’ understanding of sickle cell disease: Knowledge, attitudes, and practices at Masafu general hospital, Uganda. A survey
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Background
Sickle cell disease (SCD) is a genetic blood disorder that affects approximately 20 million people worldwide, with a relatively high prevalence in sub-Saharan Africa (SSA). Caregivers’ understanding of SCD is crucial to managing this condition. They can be potential stewards of increasing SCD awareness in communities if they are equipped with the correct information. Therefore, the study examined knowledge, attitudes, and practices regarding SCD among caregivers of children receiving chronic care at Masafu General Hospital.
Methods
One hundred caregivers were recruited for a cross-sectional survey. The survey used interviewer-administered questionnaires to collect the data. This was then entered into Epidata Manager Version 4.6.0.6 and exported to STATA version 17.0 for analysis.
Results
Among 100 sampled people, 80% were female. Most (98%) had heard of SCD, mainly from health facilities (86%). Nearly half (43%) didn’t know that both parents with SCD don’t guarantee a normal child, and 15% of caregivers were unaware of SCD’s cause. A large majority (93%) hadn’t tested their haemoglobin, and 95% didn’t know their partners’ status. Twenty-two per cent believed SCD prevents normal work, perceiving sufferers as weak.
Conclusion
The study results indicate the need for continuous caregiver education and increased SCD awareness campaigns in Uganda communities, with strategies to encourage more male involvement.
