Barriers and facilitators for implementing a dementia caregiver support strategy among Latinos in primary care

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Abstract

Introduction

Dementia has a devastating impact on Latino family caregivers, but access to caregiver support is limited. Community health workers could be leveraged to provide culturally tailored education and resources. We aimed to identify barriers and facilitators to implementation of an evidence-based and culturally-tailored caregiver support program consisting of handing an educational comic-like booklet (i.e. ¡Unidos Podemos!) supplemented with small group discussions and follow-up calls by community health workers to Latinos in primary care.

Methods

We conducted qualitative interviews with 20 community health workers, primary care providers, and other clinic staff recruited nationally via purposive sampling. We organized the transcripts for qualitative review to identify themes, using deductive analysis methods.

Results

Within the five a priori domains derived from the Consolidated Framework for Implementation Research, 21 themes were identified. These themes described a variety of barriers and facilitators to implementation of the intervention. Staff and clinicians valued the program highly and delivering it via the comic-like booklet was seen as simple. To make the program more implementable, recommendations were made to address several components that supplement and enhance use of the booklet. This included the identifying reimbursement options to schedule and hold group discussions, and incorporating staff training, decision support tools, supervision, and feedback mechanisms.

Conclusion

¡Unidos Podemos! provides a unique opportunity for primary care clinics to care for their Latino caregivers of people with dementia. Findings can inform the development, refinement and testing of an implementation strategy for community health workers to deliver ¡Unidos Podemos! in primary care.

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