Institutional Characteristics Associated with Accessing and Sharing EHR Data with the National COVID Cohort Collaborative (N3C)
Listed in
This article is not in any list yet, why not save it to one of your lists.Abstract
Purpose
The National COVID Cohort Collaborative (N3C) is one of the largest centralized, individual-level clinical data repositories for COVID-19 research in the US. Some institutions do not share data with N3C. We sought to define factors associated with N3C clinical data sharing to identify potential addressable barriers for future data sharing initiatives.
Methods
We accessed public data to derive institutional variables representative of leadership, informatics expertise, and resources.
Results
N3C data sharing institutions were more likely to have active National Center for Advancing Translational Sciences funding, have affiliated departments, centers, or institutes of biomedical informatics, and active Fellows of the American College of Medical Informatics faculty compared with institutions that did not share data with N3C.
Conclusion
While we identified specific institutional characteristics associated with N3C data sharing, there are likely other characteristics associated with institutional data sharing decisions. Understanding factors that motivate or deter institutional clinical data sharing for research is key to addressing barriers and making more data open.
