Hearing screening beyond the clinic: Childhood cancer survivors’ perceptions of a novel hearing screening program

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Abstract

Purpose

Childhood cancer survivors (CCS) are at risk for late effects including hearing loss due to ototoxic treatments. It is crucial to detect late effects like hearing loss early, but many adult CCS do not attend recommended follow-up care due to barriers such as accessibility and emotional concerns associated with revisiting medical facilities. To address those barriers, the HEAR-study piloted a new hearing screening program leveraging the extensive network of hearing aid shops across Switzerland. This study explored perceptions of CCS about this novel screening program.

Methods

We conducted semistructured interviews with 29 participants who completed a hearing test at a hearing aid shop as part of the HEAR-study. We used thematic analysis of interview transcripts, supported by MAXQDA for data analysis.

Results

Thematic analysis revealed two key themes: First, participants appreciated the program’s practicality but noted concerns about the effort of an additional appointment. Second, participants valued the personal and approachable environment in hearing aid shops, but some participants preferred hearing tests as part of an appointment with physicians, valuing immediate advice and contextual knowledge, especially in case hearing loss was found.

Conclusions

From the perspectives of CCS, this screening program shows promise as a practicable, accessible way to evaluate hearing after childhood cancer. Further evaluation from the perspectives of health care providers is needed to comprehensibly assess its feasibility.

Implications for CCS

For survivors prioritizing convenience or fearing medical institutions, follow-up screenings at accessible, community-based locations like hearing aid shops could provide a practical approach to monitoring hearing.

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