Exploring Patient Preference Information in Clinical Research and Decision Models: An Investigative Survey

Patient preferences are playing an increasingly pivotal role in defining care pathways, assessing care quality, and advancing healthcare technologies, but their current use remains unclear. We conducted an online survey collecting data from 46 experts in clinical research, pharmaceutical industry, regulatory affairs, and health technology assessment. About 30% of our respondents are using PPI routinely, and 90% are willing to prioritize their integration in the future, despite various challenges, such as limited patient engagement, difficulty in obtaining reliable data, and reluctance to deviating from traditional practices. We show here a growing recognition of the potential benefits of integrating PPI, and that concerted efforts and investments are necessary to support a wider adoption.