A mapping review of good practices of participatory research for an impactful collaboration in disabilities studies
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Introduction
Participatory research is particularly relevant to understanding the challenges faced by people with disabilities (PWDs), as it actively involves them as partners, enabling methodologies to be better adapted to lived realities and producing more relevant and applicable results. By reducing systemic barriers and promoting inclusion, this approach improves understanding and consideration of the specific needs of PWDs in research. Yet, studies have identified hurdles associated with this approach, prompting questions about how organizations portray PWDs, the dynamics among research stakeholders, the distribution of decision-making power, and the actual impact of research on its partners.
Aim
This study aims to identify the factors that influence the process and results of participatory research in the field of disability studies
Methods
We conducted a mapping review following the PRISMA-ScR guidelines, and analysis the results according to the input-throughput-outcomes Bergen model
Results
This study identifies partners skills and training, power sharing and benefits of active involvement as facilitators of participatory research. On the other hand, contextual challenges, and lack of guidance are reported as obstacles.
Conclusion
This study provides insight into how the various facilitators and obstacles to participatory research and its different processes interact to produce positive, valid and rigorous results.
