Impact of COVID-19 on the quality of life (QoL) of patients living with Sickle Cell Disorder (SCD) in Lagos, Nigeria
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Abstract
The study aimed to assess the impact of the COVID-19 pandemic on Quality of Life (QoL) in persons living with Sickle Cell Disorder (SCD) in Lagos, Nigeria and to determine how they coped during the pandemic, particularly during the period of total lockdown with the additional “SHIELDING” measures to which they had to adhere. Data was collected using a standardized protocol PedsQL, Sickle Cell Disease Module version.3.0 designed for youth within the ages of (13-18) years, (19-35) years and their parents/Guardian if underage. The survey captured data on patients’ pain impact, hurts, management, treatments, communication with their caregivers and their Guardian’s perception. The survey was performed online, or Face-to-Face/telephone interview if online was not possible. Contacts of patients and parents were obtained from the database of Sickle Cell Foundation Nigeria. A total of 105 (80 patients and 25 parents) participants responded to the survey. The age distribution of respondents was highest at 56 % in the age bracket of 13 - 18 years old. Pain crisis were very common amongst patients. The survey revealed that the type of treatment or care received at these times determined whether or not the patients visited the hospital when they had pain crises. In addition, as patients’ reports an increase in ill-treatment they experienced in the hands of health care givers, so did the fear of accessing treatment during the COVID pandemic. It was observed that the frequency of pain crises experienced by SCD patients was proportional to the patient’s quality of life (the higher the frequency of pains, the worse the QoL). As a follow-up, a more detailed study would be required, as this study was limited in the capturing of the demographics, sex and number of participants; Considering the number of persons living with SCD that visit the Sickle Cell Foundation Nigeria, (about 3,000 patients), the number of responses in this study was low (105). It is believed that a higher number of responses would have given more information about the Sickle Cell burden and the QoL of persons living with SCD in Lagos during the COVID-19 pandemic. Lagos was the epicentre of the COVID-19 pandemic in Nigeria.
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SciScore for 10.1101/2021.09.17.21263748: (What is this?)
Please note, not all rigor criteria are appropriate for all manuscripts.
Table 1: Rigor
Ethics not detected. Sex as a biological variable not detected. Randomization not detected. Blinding not detected. Power Analysis These we believe will further strengthen our statistical power and elucidate underlying needs not capture. 2.6. Funding: In-kind support was provided by RHIEOS Ventures. Table 2: Resources
Software and Algorithms Sentences Resources The link to the questionnaire was sent to patients and their parents via SMS, WhatsApp and emails upon which feedback was received via the designed platform – RedCap (a secure web application for building and managing online surveys and databases developed by Vanderbilt University in 2004). RedCapsuggested: (REDCap, RRID:SCR_003445)2.6 Data Analysis: … SciScore for 10.1101/2021.09.17.21263748: (What is this?)
Please note, not all rigor criteria are appropriate for all manuscripts.
Table 1: Rigor
Ethics not detected. Sex as a biological variable not detected. Randomization not detected. Blinding not detected. Power Analysis These we believe will further strengthen our statistical power and elucidate underlying needs not capture. 2.6. Funding: In-kind support was provided by RHIEOS Ventures. Table 2: Resources
Software and Algorithms Sentences Resources The link to the questionnaire was sent to patients and their parents via SMS, WhatsApp and emails upon which feedback was received via the designed platform – RedCap (a secure web application for building and managing online surveys and databases developed by Vanderbilt University in 2004). RedCapsuggested: (REDCap, RRID:SCR_003445)2.6 Data Analysis: SPSS 25.0 was used for data analysis. SPSSsuggested: (SPSS, RRID:SCR_002865)Results from OddPub: We did not detect open data. We also did not detect open code. Researchers are encouraged to share open data when possible (see Nature blog).
Results from LimitationRecognizer: An explicit section about the limitations of the techniques employed in this study was not found. We encourage authors to address study limitations.Results from TrialIdentifier: No clinical trial numbers were referenced.
Results from Barzooka: We did not find any issues relating to the usage of bar graphs.
Results from JetFighter: We did not find any issues relating to colormaps.
Results from rtransparent:- Thank you for including a conflict of interest statement. Authors are encouraged to include this statement when submitting to a journal.
- Thank you for including a funding statement. Authors are encouraged to include this statement when submitting to a journal.
- No protocol registration statement was detected.
Results from scite Reference Check: We found no unreliable references.
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