Impact of COVID-19 pandemic on rare diseases - A case study on thalassaemia patients in Bangladesh

  1. Mohammad Sorowar Hossain
  2. Farhana Runa
  3. Abdullah Al Mosabbir

Reviewed by

Read the full article

Listed in

Log in to save this article

Abstract

No abstract available

Article activity feed

  1. Version published to 10.1016/j.puhip.2021.100150
  2. ScreenIT

    SciScore for 10.1101/2021.03.29.21254589: (What is this?)

    Please note, not all rigor criteria are appropriate for all manuscripts.

    Table 1: Rigor

    Institutional Review Board StatementIRB: The study protocol was ethically approved by the Institutional Review Committee of the Biomedical Research Foundation (Memo: Ref. no: BRF/ERB/2020/003).
    Randomizationnot detected.
    Blindingnot detected.
    Power Analysisnot detected.
    Sex as a biological variablenot detected.

    Table 2: Resources

    Software and Algorithms
    SentencesResources
    SPSS Statistics software 22.0 (Armonk, NY: IBM Corp) was used to analyze data.
    SPSS
    suggested: (SPSS, RRID:SCR_002865)

    Results from OddPub: We did not detect open data. We also did not detect open code. Researchers are encouraged to share open data when possible (see Nature blog).

    Results from LimitationRecognizer: We detected the following sentences addressing limitations in the study:
    The major limitation of this study is the small sample size. However, this study has been conducted in a rural area using a community-based thalassaemia registry. Therefore, this study might represent the challenges faced by most, if not all, patients with thalassaemia in Bangladesh as more than 70% of people live in rural areas. Even before the COVID-19 pandemic, the lives of thalassemic children were precarious, particularly in developing countries including Bangladesh with a fragile healthcare system. The COVID-19 pandemic has exacerbated this situation further due to an acute shortage of blood supply and inadequate medical care. It is, therefore, an important call to attention to the policymakers as well as international health care agencies like WHO regarding the needs of these patients and families with rare diseases in times of pandemics. Emergency response with appropriate mitigative measures must be a priority for ensuring an acute shortage of blood supply in situations like COVID-19 pandemic.

    Results from TrialIdentifier: No clinical trial numbers were referenced.

    Results from Barzooka: We did not find any issues relating to the usage of bar graphs.

    Results from JetFighter: We did not find any issues relating to colormaps.

    Results from rtransparent:
    • Thank you for including a conflict of interest statement. Authors are encouraged to include this statement when submitting to a journal.
    • Thank you for including a funding statement. Authors are encouraged to include this statement when submitting to a journal.
    • No protocol registration statement was detected.

    About SciScore

    SciScore is an automated tool that is designed to assist expert reviewers by finding and presenting formulaic information scattered throughout a paper in a standard, easy to digest format. SciScore checks for the presence and correctness of RRIDs (research resource identifiers), and for rigor criteria such as sex and investigator blinding. For details on the theoretical underpinning of rigor criteria and the tools shown here, including references cited, please follow this link.

  3. Version published to 10.1101/2021.03.29.21254589v1 on medRxiv